Saturday, November 14, 2009

Simple Tests to Detect Alzheimer's and Dementia the Old Fashioned Way


In my little world here in Delray Beach, Florida I have learned a harsh lesson -- it is very difficult to diagnose mild cognitive impairment, dementia, and probable Alzheimer's. Here are some simple tests for Alzheimer's and dementia that could be helpful......
Bob DeMarco
Alzheimer's Reading Room
Editor



I knew something was wrong with my mother. I knew it. When I would mention some of my concerns to family and friends they would usually conclude -- she is getting old. When it first started to really bother me my mother was 86 years old.

Her friends that saw her everyday would tell me she is doing great. Her doctor of six years didn't see a problem.
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I did know her behavior was undergoing subtle changes. She talked about money incessantly, she complained about being bored incessantly. She started scrapping her feet on the ground. She said things that lead me to believe she was feeling insecure, maybe fear -- these were very different than what I heard her saying in the past.

After my mother was diagnosed with dementia her friends refused to believe both the diagnosis and me. When she would talk to family and friends that lived far away they would usually say --she sounds great.

She did sound great. She could still drive, go to the store, and play bingo. What they didn't see was how her behavior would often turn erratic. I invited all of them to come live in the front row for a few days -- they passed.

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The time came when I decided to come and spend some extended time with my mother and try to find out what was happening. At the time, you could put everything I knew about Alzheimer's and dementia in a thimble.

It took a few months before I finally started to understand the problem. It took four doctors to get to the bottom of the problem. None of the people that were seeing my mother on a daily basis saw a problem.

People in an early stage of dementia are very good at disguising the problem. They can laugh and change the conversation when you ask them questions about memory, or the ability to go here and go there. For me, it was the changes in behavior, the meanness, and the inability to walk more than a block that tipped me off.

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If a person suffering from dementia gets lost or starts having problems driving, you will never hear about it. The last thing an elderly person wants to do is lose their independence. One of the biggest symbols of independence is the drivers license. Trying to get that drivers license is like trying to get a steak out of the mouth of a bull dog.

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After I had been hear a couple of years, I learned some interesting things about my mothers behavior.

She drove her car over a concrete abutment, through a hedge and hit a tree. She then drove the car around some trees, over a sidewalk, over the lawn, and put the care in her condominium parking space. She didn't tell me, my brother, or my sister.

When I first learned about this her friends were laughing telling the story. They were impressed by the fact that she actually got the car back into her space. They did not see it as an indication that maybe she shouldn't be driving -- or worse.

Her friends, still friends, also forgot to mention that they stopped inviting my mother to their lunch time outings to restaurants because she constantly complained about money. When I asked them years later, when I first learned about this, if she had always done this -- they said no. In other words, her behavior had clearly changed but it had no impact on their view of her health.

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If you live far away from your parent and they are over 80, there is a good chance you could end up in the same situation I found myself in six years ago.

Here are few things you can try to spot mild cognitive impairment, Alzheimer's or dementia at an early stage.

To continue reading -- go here.

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Sunday, November 08, 2009

Simple Techniques for Communicating with People with Alzheimer's and Dementia

If you live with or care for someone with Alzheimer's or dementia, you should consider reading this book. The Validation Breakthrough will help you understand why Alzheimer's sufferers say what they say and do what they do. This book helps you understand communication that is often difficult to accept and hard to interpret.

You might get the impression from the title that this book is only for professionals -- this is not the case. The validation theory works and it is simple to apply.

The case studies are invaluable and provide you with specific situations that you are sure to encounter.

I am convinced everyone involved with elderly parents suffering from dementia or Alzheimer's will benefit from reading this book.

You will certainly reduce stress by learning these techniques.


The Validation Breakthrough: Simple Techniques for Communicating with People with Alzheimer's Type Dementia

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Reviews

By Martine Davis

If you live with or care for someone with Alzheimer's or other age related dementia, you must read this book ! What an eye-opener! For the first time I finally understood why Alzheimer's patient say what they say and do what they do. It all makes so much sense now. This small book reads quickly and is full of examples of real people who have been helped with the author's techniques. It shows you how to handle the blaming, accusing, name-calling and the repetitive motions ... It also explains why the way most of us react to Alzheimer's patients actions actually worsens the situation and can cause them to progress to a more advanced stage of Alzheimer's disease ! This book could extend the relationship between the patient and caregivers and should be MANDATORY reading for all staff working in nursing homes and long-term care facilities !

By J. Summers, CNA (Alaska)

An excellent book for both the professional caregiver and families trying to deal with this sometimes unfathomable disease. Gives practical ideas and techniques for helping people with dementia deal with issues from paranoia and blaming to sadness and helplessness. I have just begun to explore these techniques and am finding they work so well that they should be mandatory training for nurses, PCAs and CNAs. Instead of treating our seniors like they are children we at last have a way to talk to them on an adult level, tap into where they are at, deal with the problem at hand and we all come out better for the experience.


Reviewer: A reader

More and more relevant as we care for aging parents. With a title like this one might think: "Boring" Absolutely not so! Right from the start, the stories of the people are so real and so touching that one of my friends said she was moved to tears. She was so sad not to have known about this way of relating to her father. "It works," she told me. "Validation Breakthrough" shows a new way of relating to people with dementia of Alzheimer's type. This approach is effective in helping the person to clear up unresolved issues in their lives. You do not have to be a professionally trained therapist to use validation. Validation will make the relationship more rewarding for both people. It is not hard to learn and makes wonderful sense. Some readers may want to ask new questions of care facilities (like nursing homes) as the validation approach will keep loved ones from slipping into a vegetative state. It will also make the care much kinder, and more rewarding for the care givers


Popular articles on the Alzheimer's Reading Room


Original content Bob DeMarco, Alzheimer's Reading Room

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Monday, October 19, 2009

H1N1 Flu Shot, Alzheimer's and Dementia -- Our Decision on the Shot


The facts in this case are that the H1N1 flu virus is spreading fast, and we really haven't seen anything like it. If you watch the 60 Minutes video you will understand what I am saying.

As an Alzheimer's caregiver, I have to decide whether or not my mother will take the shot.


To read about my decision and how I made it go here.


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The Alzheimer's Action Plan: The Experts' Guide to the Best Diagnosis and Treatment for Memory Problemsstyle

Bob DeMarco is the editor of the Alzheimer's Reading Room and an Alzheimer's caregiver. The Alzheimer's Reading Room is the number one website on the Internet for news, advice, and insight into Alzheimer's disease. Bob has written more than 800 articles with more than 18,000 links on the Internet. Bob resides in Delray Beach, FL.

Original content Bob DeMarco, Alzheimer's Reading Room

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Friday, October 16, 2009

Readers Reach Out to Alzheimer's Patients, Caregivers -- Here come the Wonderful People

Newsday (the New York Newspaper) has the best coverage, collection of stories, and video on Alzheimer's on the Internet -- hands down. It appears to me that they are doing more to educate the public, and bring an understanding of Alzheimer's into the public awareness than any other publication.
"The most surprising fact about all this is how much people really care," said Karen Henley, who lives in Westbury. "Everyday people, who are struggling themselves, just want to reach out to help. I didn't think that many people cared about Alzheimer's disease, but I think Mike's age shocked everyone."
Original content Bob DeMarco, Alzheimer's Reading Room
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Popular articles on the Alzheimer's Reading Room


The Alzheimer's Action Plan: The Experts' Guide to the Best Diagnosis and Treatment for Memory Problemsstyle

Bob DeMarco is the editor of the Alzheimer's Reading Room and an Alzheimer's caregiver. The Alzheimer's Reading Room is the number one website on the Internet for news, advice, and insight into Alzheimer's disease. Bob has written more than 800 articles with more than 18,000 links on the Internet. Bob resides in Delray Beach, FL.

Original content Bob DeMarco, Alzheimer's Reading Room

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Saturday, October 10, 2009

Popular Articles on the Alzheimer's Reading Room -- September (Top Landing Pages)

Test Your Memory (TYM) for Alzheimer's or Dementia in Five Minutes (#1 June, July, August, September)
A new cognitive test for detecting Alzheimer's disease is quicker and more accurate than many current tests, and could help diagnose early Alzheimer's, dementia, or mild cognitive impairment.
To continue reading go here.

Dementia and the Eight Types of Dementia
Dementia is a an illness that usually occurs slowly over time, and usually includes a progressive state of deterioration. The earliest signs of dementia are usually memory problems, confusion, and changes in the way a person behaves and communicates.
To continue reading go here.

Five Ways to Keep Alzheimer's Away
A recently released study showed that regular exercise is one of the best ways to reduce your risk of dementia and can help slow progression of Alzheimer's disease. Less well known is the fact that if you have a big belly in middle age the chances that you could suffer from dementia are tripled.
To continue reading go here.

The Combination of Aricept and Namenda Helps Slow the Rate of Decline in Alzheimer's Patients
"The results of this study should change the way we treat patients with Alzheimer's disease. Cholinesterase inhibitors are approved for use in mild to moderate dementia, while memantine has been approved for advanced dementia. But it looks like there is an advantage in prescribing both drugs as initial treatment."--John Growdon, MD
To continue reading go here.

A Simple Three Minute Test Can Detect the Earliest Stage of Alzheimer's Disease
The study shows that the combination of a very brief three-minute cognitive screening test, called the Mini-Cog (MC), with a Functional Activities Questionnaire (FAQ) -- administered to a family member or friend -- could accurately identify individuals with MCI and undiagnosed dementia.
To continue reading go here.

Subscribe to The Alzheimer's Reading Room--via Email


Bob DeMarco is the editor of the Alzheimer's Reading Room and an Alzheimer's caregiver. The Alzheimer's Reading Room is the number one website on the Internet for news, advice, and insight into Alzheimer's disease. Bob has written more than 800 articles with more than 18,000 links on the Internet. Bob resides in Delray Beach, FL.
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Original content Bob DeMarco, Alzheimer's Reading Room

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Saturday, September 26, 2009

The Metamorphosis of This Alzheimer's Caregiver (Part One)

My name is Bob DeMarco, I am an Alzheimer's caregiver. My mother Dorothy, now 93 years old, suffers from Alzheimer's disease. We live our lives one day at a time.

I am an Alzheimers caregiver, I am the One, and if you are here you are not Alone.




To start, I am a curious person. So, when I want to know more about something I really dig in. Take it apart and put it back together.

I'm fortunate in two ways. I picked great parents, and God and my parents blessed me with an ability to read fast, and absorb information.

My brain is wired to view everything as a system. This allows me to see all the parts when I encounter something new, or when I am trying to figure things out.

When focused, I am goal oriented.

When I first learned my mother was suffering from dementia, I quickly learned you could put everything I knew about dementia and Alzheimer's in a thimble.

So, I started reading. The more I learned the more I wanted to know. I learned a great deal about Alzheimer's disease--including the science. It helped me understand a very mystifying disease. It helped me to put a frame around something that is difficult if not impossible to describe.

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At the beginning of my travels with Alzheimer's, I had to get over the shock when the diagnosis of dementia came. That took what seemed like a minute, but it was over a year.

Once I could think clearly, I decided I needed a plan. Some of it was easy--exercise, nutrition, and creating a stable environment. Finding a great personal care physician was a bigger challenge. I'm thankful I somehow realized how important this decision would be for us.

Exercise is a critical component of the care-ee, care-er paradigm. I have written often about how my mother is often "dull" and can barely walk as we head to the gym. And how, she undergoes an almost impossible to believe physical, psychological and emotional transition by the time we leave the gym.

I have not spent as much time explaining the importance of exercise for the caregiver. In order to function as an Alzheimer's caregiver you are going to need an enormous amount of energy.

The only way I know to increase the energy level is with vigorous exercise and good nutrition. As a caregiver, you need to understand that more than 40 percent of Alzheimer's caregivers suffer from depression. Exercise is an important component in the battle to keep depression away.

I am asked daily how I care for my mother, and attend to this blog. Well, I have a 17 hour day, no naps. You need lots of energy to keep that kind of schedule. I guess it is not well understood but you get more energy, not tired, when you exercise--hard.

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I continue to learn more and more about Alzheimer's each day. I continued reading and talking to those who came before me. Over time, I realized how difficult it was to find information that really helped me do my day job--living Alzheimer's from the front row.

Frankly, I read thousands of articles and all the books. I did get a good piece of information here, and a good piece of information there. This took years. There really is no one single place to turn to to get the kinds of on the job information you need to get through the day as an Alzheimer's caregiver.

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When I finally learned that I was an Alzheimer's caregiver; I realized I needed to define my role as a caregiver. Thinking of myself as a caregiver made me feel good--it made me feel good about myself. My first blog was called, I am an Alzheimer's caregiver. I used that blog to start getting a handle on the enormous amount of information I was acquiring, and to define myself. I guess you could say from those seeds came the Alzheimer's Reading Room.

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One day, I met two wonderful people--by chance. They listened to me, shaking their heads up and down (saying yes nonverbally). When I was done venting, they told me about their own round trip ride with their mother who suffered from Alzheimer's.

That day I learned one of my important lessons, I was not alone. This realization lifted a thousand pound weight off my back. It allowed me to really start thinking more clearly about developing a plan to take care of my mother.

I already knew from my life prior to caregiving--in order to succeed you need a vision, a mission, and a plan to bring that vision to fruition. I started developing a vision of how I wanted life to be for my mother and me.

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Soon after encountering those two wonderful people that taught me I was not alone, I had a set back that almost sent me into the black hole--depression.

My mother had been buying lottery tickets daily for 20 years. Cash 3, Fantasy Five, Lottery. And, those crazy scratch off tickets. I got what I thought was a great idea. Instead of buying them everyday, why not buy all of them once a week. I started doing that on my own--for my mother.

Then the worst day ever came. I took my mother into the store. I handed her the plastic envelope with all the lottery cards and the money and said--go get the lottery tickets. She had no idea what I was talking about. She said where? I pointed--over there, she didn't move. I took her hand and walked her over to the counter. I said, go ahead. She said, what do I do? She didn't know what to do (this took place four and a half years ago).

At that point, I felt like I was being electrocuted. Later that day I started to feel disoriented. At home, I couldn't shake a feeling of helplessness.

I am a thinker, and was thinking about what I should do. But instead of a plan, I kept thinking we are near the end. She won't know me soon. She is going to be laying in bed, she won't be able to eat. All day and all night this was all I could think about. The stress was enormous.

I did feel like I was going into the black hole of depression. I felt myself fighting.

Then miraculously I learned one of the most important lesson of them all. You Are the One.

We were in the doctors office, the office of our wonderful doctor--Dr. Carlos Chiriboga. I was explaining to him what happened and how I was feeling.

He explained to me that if I didn't let my mother do things, she would forget how to do them. In other words, it was not necessary, nor was it a good idea for me to be doing everything for her.

He then stunned me. He said, You Are the One. You know what she can and cannot do--so if you think she can do it, let her do it. He told me I might get criticism, but not to let it deter me.

I went home and thought about this. Sure enough, the thousand pound weight was off my back (again). Once again, I felt empowered.

My new mantra became--I am an Alzheimer's caregiver, I Am not Alone, and I Am the ONE. I recite this mantra when I wake up in the morning, and before I go to bed. I look at myself in the mirror while doing this. I always smile.

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As time went on, I started to get a new vision. Soon, I started doing lots of things that were out of the box. Amazingly, just about everyone of them worked.

Imagine my 88 year old mother no longer going to the Silver Sneakers class, but working out with me in the gym. I can't tell you how many people--all women--that yelled at me, and told me to get my mother off the treadmill and on to a bike. Great in theory, and I had tried it. She would peddle for 15 seconds and then stop.

I learned to hold my hand up, palm out, when these people came at me, and not say a single word. I just looked them right in the eye. Until they walked away. I thought about what Dr. Chiriboga has told me--don't let anyone deter you.

I'm the one, and I knew my mother could walk on the treadmill even tough at times it looked like she was going to keel over. Then she would stand up straight and start walking. You might not believe this but around the six minute, 30 second mark every time she would start bending over like she was going to fall. At the 7 minute mark she would stand straight up and start walking. It happened every time for years. I guess it looks kind of ugly. To me it is all part of a pattern.

If you thought that was crazy then imagine the look on the faces of the people in the gym when I started putting my mother on the weight machines. Amazingly, my mother hates the treadmill, she loves the weight machines. She cannot wait to do the shoulder pulls, chest pulls, etc. She doesn't really like the leg machine.

By the way, after a while, one by one people started coming up to me in the gym and praising me. They usually say--you are a good son. Sometimes they want to talk to me. People that see us all the time, smile and talk to my mother. It all came together very nicely.

I still get the occasional person that wants to rain on our parade.

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I didn't realize it at the time but I was undergoing a real metamorphosis as a caregiver. In the beginning, the first stage, I was just trying to accept Alzheimer's. Get out of denial and get on with the important parts of caregiving.

Then one day--a couple of years in--I came to a realization--it was time to say NO to Alzheimer's. I decided to fight.

I decided I would not accept the crazy behavior, the incontinence, and I would not continue to live in a shell. Instead, I would find ways to change things.

First, we would go out in the world and resume living our life the way we had before the diagnosis. Second, I would find a new way to communicate with my mother. Third, I would identify each problem that comes with the disease and tackle it head on.

Change, not acceptance.

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One of the most important observations I made was that my mother had very well defined patterns of behavior.

  • How she walked on the treadmill,
  • How she spit venom at me with her words,
  • How she woke up at 1:25 AM, 4:30 AM,
  • How she wanted to start cleaning the house at 9:37 PM,
  • How when she would get mad at me, go into her room, then would come out of her room at 7:09 PM,
  • How Monday and Tuesday's were good days,
  • Wednesday the downtrend started into Thursday,
  • How she would go in here room and curl up into a ball on Thursday and not come out until Friday.

I started to wonder if I could change these patterns, and change them into positive patterns. I'll answer that question right here--Yes you can. I'll be writing about how I did it soon.

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I am an Alzheimers caregiver, I am the One, and if you are here you are not Alone.

End part one.

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Bob DeMarco is the editor of the Alzheimer's Reading Room and an Alzheimer's caregiver. The Alzheimer's Reading Room is the number one website on the Internet for news, advice, and insight into Alzheimer's disease. Bob has written more than 800 articles with more than 18,000 links on the Internet. Bob resides in Delray Beach, FL.
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Tuesday, September 22, 2009

What if Mrs. J Wanders Away and Ends Up Dead?

Rose Lamatt lived the life of an Alzheimer's caregiver for 14 years. She has witnessed Alzheimer's behaviors from every angle (see Bio below). With her eyes wide open, she is now a concerned on-looker that feels compelled to take action. She is seeking direct help or advice. Please take the time to read her article and respond.



I’m worried that Mrs. J. is going to get lost in the woods, or something worse might happen to her.
To continue reading and to offer advice go here.




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