Showing posts with label you. Show all posts
Showing posts with label you. Show all posts

Thursday, December 19, 2013

Family Denial of Alzheimer's

It’s human to deny what we find unpleasant or frightening.

Family Denial of Alzheimer's

Saturday, August 31, 2013

Have You Been Abandoned?

Do you feel like your life has been put on hold?

Have your relatives and friends stopped calling? Or, are they simply fading away as time goes on?

Ever hear this one, I don't know how you do it? While the person offers little or no help.

Do you feel abandoned?

Continue Reading

+Bob DeMarco , +Alzheimer's Reading Room

 To learn more about Alzheimer's and Dementia visit the Alzheimer's Reading Room

Saturday, July 27, 2013

Why Are Alzheimer's Caregivers Frustrated?

One of the things that makes Alzheimer's different is that is impossible to know at what rate any given patient will experience cognitive decline. This state of "unknowing" is disconcerting to Alzheimer's caregivers.

How Alzheimer's Patients Experience Cognitive Decline

How Alzheimer's Patients Experience Cognitive Decline

+Bob DeMarco , +Alzheimer's Reading Room

To learn more about Alzheimer's and Dementia visit the Alzheimer's Reading Room

Thursday, June 27, 2013

Unexpected but Delightful Insights from My Mom with Alzheimer’s

How terrible that someone's "mind would play tricks" on them, I thought. Your "mind" should be your friend; after all it's in your head and not someone else's. 

Wednesday, May 01, 2013

Did you ever wonder why most Alzheimer's patients stick like glue to their caregiver?

Call out their caregivers name when they can't see them?

Want to know where you are when they can't see you?

Tuesday, February 26, 2013

Alzheimer's Disease Research Centers

Each center has its own unique area of emphasis, a common goal of the ADCs is to enhance research on AD by providing a network for sharing new ideas as well as research results. Collaborative studies draw upon the expertise of scientists from many different disciplines.
For patients and families affected by AD, the ADCs offer:
  • Help with obtaining diagnosis and medical management (costs may vary—centers may accept Medicare, Medicaid, and private insurance).
  • Information about the disease, services, and resources.
  • Opportunities for volunteers to participate in drug trials, support groups, clinical research projects, and other special programs for volunteers and their families.
Some ADCs have satellite facilities which offer diagnostic and treatment services and research opportunities in underserved, rural, and minority communities.
Alzheimer's Disease Research Centers

Monday, February 25, 2013

Dementia Patients in the Emergency Room

This hair raising emergency room story had a happy ending. It does not always end that way. In fact, more often than not it doesn't.

By Carole Larkin
Alzheimer's Reading Room

Carole Larkin
Carole Larkin
Yesterday in the late afternoon I received a phone call from a professional caregiver I had placed in one of my client’s houses a long time ago. I consider this lady to be one of the most extraordinary caregivers I have ever seen, anytime anywhere.

She is taking care of a client that I consider to be one of the most extraordinary clients I have ever had (and NOT in a good way).

Anyways, the caregiver called and said that the client had woken from a nap and was talking and acting different than she ever had before. 

She said that the client was hallucinating and that her sentences contained words in the wrong place in the sentence and even had some non-words in the sentences. I had her put my client on the phone and I talked with my client for a few minutes. It was true.

Jump to the Alzheimer's Reading to continue reading.

Sunday, February 24, 2013

My Hospice Care Decision for Dotty

My Hospice Care Decision  for Dotty
Let me start by saying that I had a crystal clear understanding of the types of care that Dotty wanted at the end of her life. We had these discussion more than 20 years prior to her death.

Dotty did not want to be resuscitated, put on an machines that prolonged her life for weeks or even days, and she did not want her life extended artificially.

I had an advance directive, and Power of Attorney, that gave me the legal power to make decisions concerning Dotty's end of life care. Or, for any care decision she could not make on her own. These documents were signed and executed well in advance. 

Dotty's clear wish was to die at home and she wanted Hospice and Palliative care.